Young Saudi woman fulfills dream of supporting ‘butterfly skin’ patients

Young Saudi woman fulfills dream of supporting ‘butterfly skin’ patients
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Abrar Al-Othman, who was born with epidermolysis bullosa that causes painful blisters from even minimal contact, has written three books about the disease. (Supplied)
Young Saudi woman fulfills dream of supporting ‘butterfly skin’ patients
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Abrar Al-Othman establishes 'The Butterfly' organization to raise awareness and provide resources for families affected by this rare disorder. (Supplied)
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Young Saudi woman fulfills dream of supporting ‘butterfly skin’ patients

Young Saudi woman fulfills dream of supporting ‘butterfly skin’ patients
  • Al-Othman saw an opportunity to make a difference for this patient population and expand her efforts from personal initiatives to national programs

JEDDAH: A young Saudi woman with a rare skin condition has realised her dream by founding a nonprofit organization dedicated to improving the lives of those affected by epidermolysis bullosa, commonly known as “butterfly skin.”

Abrar Al-Othman, who was born with this genetic disorder that causes painful blisters from even minimal contact, revealed her identity a decade ago and turned to social media to spread positivity. She has written three books about the disease, hoping to inspire others who face similar challenges.

Despite the obstacles she has faced, Al-Othman saw an opportunity to make a difference for this patient population and expand her efforts from personal initiatives to national programs.

With the support of her father and sister, she established “The Butterfly” organization to raise awareness and provide resources for families affected by this rare disorder.

Arab News met Al-Othman, 29, at the organization’s first community activity in Jeddah over the weekend, where they set up an awareness corner in a shopping mall.

She said: “The Butterfly organization was founded three months ago, and here we are witnessing its first activity. Yes, it is a dream come true for me because I have been raising my voice alone, but now I have a strong support team to help spread the message about the disease and support patients living with butterfly skin.”

Patients and their families attended the three-day event, along with a few supporting associations, highlighting the importance of this support in improving patients’ quality of life and raising awareness about the disease. This community activity coincides with Epidermolysis Bullosa Week.

The The Butterfly board’s chairperson, Renad Al-Othman, said that this week is EB Awareness Week and that The Butterfly organization, which provides hope and support for EB patients and their families, is working to combat the disease by creating a butterfly effect in the community through its social media platforms and events like this.

“This is the first activity of our new organization, which is considered as the first in the Kingdom to provide hope and support for EB patients and their families,” she said.

Hamid Al-Othman, chairman of the board of The Butterfly, said that the aim of establishing the association was to raise awareness in the community and provide assistance to patients in finding solutions and reducing the exacerbation of diseases for those who cannot afford treatment.

Dr. Hani Al-Afghani, a consultant oncologist and cancer geneticist at Security Forces Hospital Makkah, told Arab News: “Most people may not know about epidermolysis bullosa, but it is hard to forget once you see it. Currently, there is no cure for the disease.”


Saudi project clears 720 Houthi mines in Yemen

Saudi project clears 720 Houthi mines in Yemen
Updated 5 sec ago
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Saudi project clears 720 Houthi mines in Yemen

Saudi project clears 720 Houthi mines in Yemen

RIYADH: Members of Saudi Arabia’s Project Masam removed 720 explosive devices from various regions of Yemen last week.

The total included 29 anti-personnel mines, 21 anti-tank mines and 670 unexploded ordnances, according to a recent report.

Ousama Al-Gosaibi, the initiative’s managing director, said a total of 467,431 mines had been cleared since its inception in 2018.

The explosives were planted indiscriminately and posed a threat to civilians, including children, women and the elderly.

Project Masam is one of several initiatives undertaken by Saudi Arabia on the orders of King Salman to help the Yemeni people, clearing routes for humanitarian aid to reach the country’s citizens.

The demining operations took place in Marib, Aden, Jouf, Shabwa, Taiz, Hodeidah, Lahij, Sanaa, Al-Bayda, Al-Dhale and Saada.

The initiative trains local demining engineers and provides them with modern equipment. It also offers support to Yemenis injured by the devices.

Teams are tasked with clearing villages, roads and schools to facilitate safe movement for civilians and the delivery of humanitarian aid.

About 5 million people have been forced to flee their homes since the start of the conflict in Yemen, many of them displaced by the presence of land mines.


Saudi Arabia sends 14th relief plane to Lebanon

Saudi Arabia sends 14th relief plane to Lebanon
Updated 27 October 2024
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Saudi Arabia sends 14th relief plane to Lebanon

Saudi Arabia sends 14th relief plane to Lebanon

RIYADH: The 14th KSrelief aid plane to Lebanon arrived on Sunday at Rafic Hariri International Airport in Beirut, Saudi state news agency SPA reported. 
The plane carried essential relief supplies, including food, medical, and shelter materials, aimed at supporting those affected by the ongoing crises.
This follows the directives of King Salman and Crown Prince Prince Mohammed bin Salman to support the Lebanese people.


Saudi deputy foreign minister engages in key diplomatic meetings at donors’ conference in Jeddah

Saudi deputy foreign minister engages in key diplomatic meetings at donors’ conference in Jeddah
Updated 26 October 2024
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Saudi deputy foreign minister engages in key diplomatic meetings at donors’ conference in Jeddah

Saudi deputy foreign minister engages in key diplomatic meetings at donors’ conference in Jeddah

JEDDAH: Saudi Arabia’s deputy minister of foreign affairs Waleed Elkhereiji held a series of high-level meetings on Saturday on the sidelines of the Donors’ Conference to Support Internally Displaced People and Refugees in the Sahel and Lake Chad Region.

The conference, held in Jeddah, brought together international representatives to address the humanitarian challenges impacting the region.

Elkhereiji met with Hissein Brahim Taha, Secretary-General of the Organization of Islamic Cooperation (OIC), to review Saudi Arabia’s relations with the OIC across various sectors.

Discussions also covered significant regional and international developments and the Kingdom’s ongoing efforts to address these challenges. Saleh Al-Suhaibani, the Kingdom’s Permanent Representative to the OIC, was present at the meeting.

In a separate engagement, Elkhereiji met with UNICEF Deputy Executive Director Ted Chaiban.

The two officials explored opportunities to enhance Saudi-UNICEF cooperation, focusing on the organization's humanitarian efforts and sustainable development goals (SDGs). Al-Suhaibani and Fareed Al-Shehri, Director General of the Ministry of Foreign Affairs branch in the Makkah Region, also attended the meeting.

Elkhereiji also held talks with Mohamed Salem Ould Merzoug, Mauritania's Minister of Foreign Affairs, African Cooperation, and Mauritanians Abroad.

Their discussions centered on strengthening bilateral relations between Saudi Arabia and Mauritania, while also addressing regional and international developments.

These meetings underscore Saudi Arabia’s active role in fostering international cooperation and addressing pressing humanitarian issues in the Sahel and Lake Chad regions, with the aim of contributing to sustainable development and stability in affected areas.


KSrelief chief, UNHCR official meet on sidelines of Sahel donor conference

KSrelief chief, UNHCR official meet on sidelines of Sahel donor conference
Updated 26 October 2024
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KSrelief chief, UNHCR official meet on sidelines of Sahel donor conference

KSrelief chief, UNHCR official meet on sidelines of Sahel donor conference
  • Al-Rabeeah and Mazou discussed ongoing relief efforts and explored avenues to bolster cooperation in aid distribution and refugee assistance

JEDDAH: Dr. Abdullah Al-Rabeeah, head of KSrelief, met with Raouf Mazou, the UNHCR assistant high commissioner for operations on Saturday to address critical humanitarian needs in the Sahel and Lake Chad Basin, Saudi Press Agency reported.

The meeting was held on the sidelines of the High-Level Ministerial Donors Conference, co-hosted by KSrelief and the Organization of Islamic Cooperation in Jeddah.

Al-Rabeeah and Mazou discussed ongoing relief efforts and explored avenues to bolster cooperation in aid distribution and refugee assistance.

Mazou praised Saudi Arabia’s extensive humanitarian initiatives, particularly through KSrelief’s efforts to aid displaced populations worldwide.

The conference shed light on a crisis that has often been overshadowed by other global events.

More than 33 million people across six nations — Nigeria, Niger, Chad, Cameroon, Burkina Faso, and Mali — are suffering the severe consequences of conflict, displacement, and food insecurity.

Addressing this pressing crisis, the Jeddah conference brought together international leaders, government representatives, and aid organizations, emphasizing the urgency for unified action and financial commitment to meet the needs of millions affected.


Forgotten no more: global leaders confront Sahel and Lake Chad Basin crisis at Jeddah conference

Forgotten no more: global leaders confront Sahel and Lake Chad Basin crisis at Jeddah conference
Updated 26 October 2024
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Forgotten no more: global leaders confront Sahel and Lake Chad Basin crisis at Jeddah conference

Forgotten no more: global leaders confront Sahel and Lake Chad Basin crisis at Jeddah conference
  • Issue requires ‘multifaceted, sustained response,’ KSrelief chief tells Arab News

JEDDAH: After years of international neglect, the worsening humanitarian crisis in the Sahel and Lake Chad Basin region finally commanded global attention on Saturday as international leaders, humanitarian organizations, and government representatives convened in Jeddah for the High-Level Ministerial Donors Conference. 

Co-hosted by Saudi aid agency KSrelief and the Organization of Islamic Cooperation, the event focused on the plight of more than 33 million people across six countries — Nigeria, Niger, Chad, Cameroon, Burkina Faso, and Mali — struggling with conflict, displacement, and hunger. 

“The fact that we are all here today is already a success,” Dr. Abdullah Al-Rabeeah, supervisor-general of KSrelief, told Arab News on the sidelines of the event. “This conference has brought a forgotten crisis back to the forefront, where it deserves to be, and we are giving voice to millions who have been ignored for too long.”

A crisis long overlooked by the world

For years, the multifaceted crisis in the Sahel and Lake Chad Basin region has failed to capture the sustained attention of the global community. Despite the destabilizing effects of violent extremism, environmental degradation, and deep-seated poverty, the region has struggled to secure the international resources needed for an effective response. 

Speaking to Arab News on the sidelines of the conference, Gilles Fagninou, UNICEF’s regional director for West and Central Africa, described the dire state of affairs.

“This is one of the most severe humanitarian crises we face, yet it receives far less attention than others,” Fagninou said. “Millions of women, children, and families are trapped in a cycle of suffering that the world seems to have forgotten.”

The violence that is responsible for much of the displacement of the local population in the area has largely been caused by armed groups such as Boko Haram and the Islamic State West Africa Province, which continue to spread terror across northern Nigeria and the broader region. Their brutal insurgencies have forced more than 11 million people from their homes, creating one of the largest displacement crises globally.

Patrick Youssef, regional director for Africa at the International Committee of the Red Cross, emphasized this during his interview with Arab News. “Every year, we see more displacement, more conflict, and an ever-widening gap between humanitarian needs and the resources available,” he said. “Conflict and climate change are converging, making the suffering of these populations unimaginable.”

A human catastrophe: displacement, hunger, and desperation

The humanitarian fallout from the crisis is staggering. Families displaced by conflict now reside in overcrowded camps where basic necessities — food, clean water, and medical care — are in critically short supply.

Al-Rabeeah stressed the human cost, saying: “The numbers are not just statistics — behind every figure is a person who has lost their home, their livelihood, and their sense of safety.”

With more than 3 million internally displaced persons in Nigeria alone and millions more across Chad, Niger, and Burkina Faso, the region’s humanitarian needs are overwhelming.

A particularly pressing concern is food security. According to UNICEF, 13 million people are at immediate risk of malnutrition, with children disproportionately affected. Fagninou warned that the situation is on the verge of spiraling further into disaster.

“We are on the brink of a catastrophe,” he said. “If the international community does not act now, millions of lives are at stake. This crisis is happening now — it is not a distant threat.”

Climate change: a growing threat to stability

Compounding the region’s instability is the devastating impact of climate change. Lake Chad, once the heartbeat of economic and social life for nearly 30 million people across Nigeria, Chad, Niger, and Cameroon, has shrunk by a staggering 90 percent over the last 50 years due to climate change and unsustainable water use.

The loss of so much of the lake has severely undermined local economies, particularly in fishing and agriculture, while desertification is forcing nomadic herders and farmers into direct competition over dwindling resources.

Youssef highlighted the brutal reality of these interconnected crises in his interview, saying: “The interplay between violence, resource scarcity, and environmental degradation is overwhelming communities.

“We are seeing the catastrophic effects of climate change in real-time. Livelihoods are collapsing, and displaced populations are struggling to find even the most basic resources, such as water and food.”

Erratic weather patterns, including droughts and floods, have further worsened the situation, with agricultural production becoming increasingly unreliable. The Sahel region is now seeing the expansion of arid lands, driving migration and intensifying conflicts over resources. 

As Al-Rabeeah noted, addressing these environmental challenges is key to long-term stability. “It is not enough to provide immediate relief; we need to invest in sustainable development and climate adaptation strategies that can prevent future crises,” he said.

The urgent need for international action

Despite the magnitude of the crisis, it remains one of the most underfunded humanitarian emergencies in the world. The UN and international NGOs have repeatedly called attention to the funding gaps that have hampered efforts to meet basic needs, such as food, healthcare, and education. 

Al-Rabeeah underscored the importance of a sustained international commitment: “While food security and healthcare are immediate priorities, we must also focus on building resilience and creating pathways for development. This is not just a short-term emergency — it requires a multifaceted, sustained response.”

Both Fagninou and Youssef echoed his sentiments. Fagninou, speaking on the role of the global community, said: “The international community must recognize the urgency of this crisis and provide the necessary resources. Local governments are doing their part, but they cannot tackle this alone.”

Youssef, reflecting on the broader needs, remarked: “Humanitarian assistance alone will not end the suffering. We need a commitment to peace and stability, alongside humanitarian efforts. Without addressing the root causes of conflict, the cycle of violence and displacement will only continue.” 

A path forward: hope amid the crisis

The presence of high-level delegations, UN agencies, and major donor countries at the conference has produced a renewed sense of hope that the Sahel and Lake Chad Basin region will no longer be overlooked, and signals a potential turning point in mobilizing international support. Al-Rabeeah, for one, expressed optimism.

“The fact that so many key stakeholders are at the table — from governments to international donors and UN agencies—means that this crisis is no longer being ignored,” he said. “I believe we can generate significant financial commitments, despite global economic challenges.”

This conference could prove to be a pivotal moment in the international response to one of the world’s most overlooked humanitarian crises. It is a call to action; a reminder that the people of the Sahel and Lake Chad Basin are not forgotten, and that — with the right support — there is still hope for a brighter future.